First Crowdsourced Book on Endometriosis Released
137 Women Share Experiences, Treatments for Painful Chronic Health Condition
Mountain View, CA (PRWEB) March 12, 2009
CureTogether, a Health 2.0 Startup based in Silicon Valley, today released the first crowdsourced book on endometriosis. Assembled from the input of 137 women living with this common, but poorly understood condition, "Endometriosis Heroes" is the product of an ongoing online research study at http://www. curetogether. com (http://www. curetogether. com).
"Patients came together and decided what symptoms and treatments they wanted to track. They went on to diligently gather detailed, quantitative data on their bodies and experiences," said Alexandra Carmichael, co-Founder of CureTogether. "The hope of this book is to spread awareness, reach out to people in pain who may not have heard of endometriosis, and increase interest and funding for future research."
"Many other women who are suffering will find this very helpful and inspiring," said Elizabeth Rummer, MSPT at the Pelvic Health and Rehabilitation Center in San Francisco. A patient with endometriosis added, "This is great. I am just starting to really appreciate what awesome power CureTogether can have."
Endometriosis is a painful chronic condition that affects 5-10% of women. It's one of the most active condition communities at CureTogether, with information about symptoms, treatments, and causes added by over 130 women with endometriosis. The "Endometriosis Heroes" book is available at http://www. curetogether. com/EHeroes (http://www. curetogether. com/EHeroes).
CureTogether launched in 2008 to help people anonymously track and compare health data -- to better understand their bodies, make more informed treatment decisions and contribute data to research. Starting with 3 conditions (Migraine, Endometriosis and Vulvodynia), its members have since expanded it to support 228 conditions.
*Please note that the information in Endometriosis Heroes and at CureTogether. com does not constitute medical advice.